Nottingham Pulmonary Fibrosis Support Group

We’re here to support patients, carers and family members affected by pulmonary fibrosis

 

A warm welcome awaits you at our in-person support group. We also run a private Facebook group.

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We meet regularly to share ideas and experience, learn more about living well with pulmonary fibrosis and enjoy social events and a good chat!

Complete our membership form now, or if you have any questions please call or email our Support Group Lead, Wendy Dickinson on 07710 015490 or wdickinson1@gmail.com.

Why not also get involved with our Facebook group?

Complete the form

Next Steps

  • Facebook Group

    Join our Facebook group to connect with other members in a private, supportive space.

  • About Pulmonary Fibrosis

    Find out more about Pulmonary Fibrosis including symptoms, diagnosis and resources to help you learn more.

  • Our Meetings

    We’d love to see you at our support group meetings - click here to find out where they take place and what they involve.

News & Personal Stories

Personal Stories
Travelling with Pulmonary Fibrosis - Resources, Advice & Experiences.
Travelling with Pulmonary Fibrosis - Resources, Advice & Experiences.

Everyone loves a holiday or to visit family and friends abroad. But when you have pulmonary fibrosis, you have more challenges than most. This short guide is designed to help you navigate those challenges and includes advice from fellow patients and links to helpful resources.

Ruby and Subita
Ruby and Subita

Remembering my mother by Ruby Rai. My Mum, Subita Rai, was diagnosed with PF in 2000, aged 52. This was after around about a year to 18 months of repeated bouts of what her GP had said were chest infections.

Susan | Frontline nursing to homeworking
Susan | Frontline nursing to homeworking

Susan talks about her experience of volunteering as a Patient Ambassador with Action for Pulmonary Fibrosis during the last 10 months of Lockdown. Susan has pulmonary fibrosis. Overnight she switched from frontline nursing to front room home working.

We are supported by the charity Action for Pulmonary Fibrosis and the respiratory team at The Nottingham University Hospitals NHS Trust.

 
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